12 August 2017

A New Muscle

She thought she was strong but she had no idea yet...
Photo credit Paul Knudsen Portfolio Studios 2011

When you are pulled back you are being set up just like a slingshot for a major launch to do great things, to go far.  The further you are pulled back, the further you have the potential to go.  Turn your setbacks into comebacks.  That's my paraphrase of what I heard Michael Jr. say this week when he was speaking at the Global Leadership Summit.

Resilience is a muscle.  That muscle in my life was very weak.  I had not yet had much opportunity to even try to use it.  Of course, now it feels like we have been training it hard as a family for the past six years.  I'm starting to feel ready to train others... I should be on the mic!  Sheryl Sandberg says in her book Option B, "In my experience, survivors want the opportunity to teach and not be shunned because they went through something unknowable, still people hesitate to ask questions out of concern that probing will dredge up trauma."

But now my question is what and where?  I hear people say to me that I inspire them.  I am still teaching at the gym.  As much to make myself keep going and some so that I continue to have a platform to share my "no excuses" story.  But lately that isn't enough.  Maybe because I haven't been writing.  I actually have 5 saved drafts but the most recent one is from June 2016 so I'm not really writing anymore like I was.  I've been frustrated.  Frustrated with my weight and my illness and my limitations that my illness puts on me.  When I'm not asked to speak or help with something I wonder, do people not want to bother me or do that think I'm not up to the challenge?

I want to share my "no excuses" story that includes more of my faith and how that faith has helped me tell my fears to shut up.  For 5 long years I stared at my expiration date and did not allow myself to dream.  Gary Haugen said, "Fear is the silent destroyer of dreams!"  Jesus reminds us in John 15:27, "Peace I leave with you; my peace I give you.  I do not give to you as the world gives.  Do not let your hearts be troubled and do not be afraid."  I have to change my thinking from defense to offense.  What can and will go right instead of focusing on the alternative.  Today I will do something I love because I don't know how long I have left, none of us do.  Today is a gift.  If I'm still here next year, I will attend the Global Leadership Summit again...it gave me lots to think about and a little to write down!


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03 January 2017

2016 Reflection Letter

            We pray that this letter finds you facing the start of 2017 with renewed energy and a deepened faith as you have seen prayers answered and joy renewed.  We continue to fight for our faith to be bigger than our fears.   We studied Ephesians 6 this year and have been finding ways to apply it.  One way we have been able to do this was after reading “The Prince Warriors” by Pricilla Shirer:  “That is why you must always follow the Way of the Armor, because sometimes your worst enemy…is yourself.”
This year we had the privilege to see prayers that we have prayed for several years answered.  With those answered prayers came big changes for our little family.  At the end of February, David was hired as Financial Manager for Pearson Air here in Arlington, and, in leaving the car business, he was able to start spending his Saturdays with us.  He says he could not have imagined a better position for himself and looks forward to a long career there.  In 2016, I had 2 more stable MRIs and my brain cancer continues to behave itself.  We have made several medication changes and I am feeling some better.  In June 2016, I crossed a major milestone with 5 years survival. Then in October after almost a year of searching, we found and purchased our forever home.  God’s hands were all in the details of that process and our home of 15 years sold in one day.  We moved in on November 17th and are still getting settled.
We’ve been learning.  David and I attended the Global Leadership Summit where David’s leadership skills were challenged and built, and I walked away determined to be present more than perfect.  Kirstyn started junior high and took on all advanced placement classes, and continues to work very hard to make all A’s.  James spent countless hours studying Albert Einstein and learning the beginnings of how to write computer code.  He was designated as Gifted and Talented and is currently watching YouTube for “life hacks” and “science experiments”.  Both kids have taken up golf and have been playing in Jr. PGA leagues.  We’ve even been able to play as a family… it’s only slightly humbling to have the kids giving me advice and pointers.
Kirstyn (13) continues to amaze us with her music talent and bravery.  She went from singing on the KidsRock praise team to the Youth Praise team.  She has had opportunities to sing solos in the 6th grade musical, talent show, summer camp, and in “big church” in our Christmas kickoff called Hanging of the Green.  She also made All Region Honors Choir through school and is still playing piano and collecting blue ribbons and trophies. 
James (9) is our left brained child.  His math skills impress us all.  He really started to enjoy golf when his coach taught him how to read the greens.  He went from holding the club to lying down with a level and a sheet full of mathematical formulas and like the rest of us is practicing getting his body to do what he knows needs to happen to sink the putt.  He played basketball and football, and really found a love for the game (and his hustle) when he put on a helmet and pads for the first time this fall. 
We have traveled to visit family and for adventure.  David and I celebrated our 15th anniversary on our first cruise.  In July we went to the beach and built sandcastles.  And in December we went to Disney with our kids and our moms. We shared in so much joy when we attended weddings and birthday parties.  We mourned the loss of my Uncle Johnny, Great Uncle Frank, and Great Uncle CA, and continue to be reminded of the importance of family and living out our faith in Jesus.  We celebrated Thanksgiving in Arkansas on the farm and then Christmas in our new home with both of our moms and my grandmother here.
We wish you many blessings in 2017, and I want to leave you with James’ takeaway from Harvest America, “Stuff you do might be good, but that’s all just doo-doo.  All that really matters is what Jesus did for us.”  So go forth, and share the Gospel and the love of Jesus in your own way and we will too!  Our prayer going into 2017 was said best by Oswald Chambers, “Beware of spending too much time looking back at what you once were when God wants you to become something you have never been.”


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24 December 2015

Use Me

Not "Why me?" but "Use Me?"  Through the many tears I have shed in the past few months my prayer has been for God to use me so that this pain that we are in isn't for nothing.  I feel like I asked my fair share of "Why me?" when I was diagnosed with cancer.  The truth is that just by asking that question it reveals the selfishness that remains in me.  Why not me?  Why am I not constantly just praying even pleading with God to use me in spite of me?  So, this Christmas season will you join me in asking HIM to "Use us?"

So, right now our circumstances are hard.  We lost both of our Dads in just two months.  I feel like I haven't even started to mourn my Dad's death and now we are faced with David's Dad passing away.  I wish I knew why.  I would love to know now how God will use this.  Meanwhile I am selfishly praying that God is not preparing my family for worse, but will give us opportunities to minister more effectively in our community and world.

As I try to look back over our 2015 I see so many joys and blessings, but I am still focused on the losses and the hurts. We took our kids to 3 funerals for 3 great men that we all miss.  My sister's father in law that my kids also called Papa (he loved so big he made my kids think they were kin to him too!), My Daddy 10/14 (Pappy) and David's Dad 12/14 (Grandpa).  I am forcing myself to reflect on the good so I can make sure to not miss how God worked in our lives this past year.  The kids are growing and learning and tackling new challenges on a regular basis.  They are excelling in school (6th and 2nd now!) and devouring books like crazy!  They are memorizing math facts and scriptures.  They are singing and playing sports with a focus on praise and sportsmanship.  They gave up birthday presents from their friends to collect for charity.  We made memories!  We laughed and cried.  We asked questions and are learning to trust His plan.  Psalm 105:4 says, "Look to the Lord and His strength; seek His face always."

We went to Disney World, Nasa, several 5K's, our first Relay for Life, the Beach (our 10th summer to vacation with my parents in Port A), and Six Flags.  James' flag football team took 2nd in the Arlington City Finals and Kirstyn won more blue ribbons than I can count for playing piano.  She sings every chance she gets and is in 2 choirs and on our church KidsRock praise team!  She even talked her music teacher into putting in extra work to enter the Macy's acapella challenge.  James is in advanced placement classes and constantly has us in awe of random facts that he has learned.  David has worked way too many hours and has been honored as his dealership's "Hardest Charger".  I'm still fighting Brain Cancer (stable!), teaching Body Pump, and selling insurance.  I had the opportunity to share some of my cancer story for a video and a professional did my makeup!  I'm praying for more opportunities to speak and share my heart.  I am in BSF.  Last year we studied the life of Moses and this year we are in Revelation.  David and I are leading a young marrieds connection group at our church again this year... we are learning more than they are!

Labor Day weekend we took the kids to see the movie War Room and saw how Miss Clara had a prominent place in her home where she wrote down answered prayers.  She kept a constant reminder of how God really does hear us.  We came home and cleaned out our hall closet and made our very own War Room.  We challenged each other to stop giving God our status updates and start really praying with strategy.  It warms my heart to see the kids writing names of their friends on the whiteboard and checking off answered prayers.  We are constantly looking as a family to find a need to meet rather than a battle to fight.  As we enter 2016 with heavy hearts I am praying Psalm 4 over my family.

Answer me when I call to you,
    my righteous God.
Give me relief from my distress;
    have mercy on me and hear my prayer.
How long will you people turn my glory into shame?
    How long will you love delusions and seek false gods?
Know that the Lord has set apart his faithful servant for himself;
    the Lord hears when I call to him.
Tremble and do not sin;
    when you are on your beds,
    search your hearts and be silent.
Offer the sacrifices of the righteous
    and trust in the Lord.
Many, Lord, are asking, “Who will bring us prosperity?”
    Let the light of your face shine on us.
Fill my heart with joy
    when their grain and new wine abound.
In peace I will lie down and sleep,
    for you alone, Lord,
    make me dwell in safety.
 
Merry Christmas from our family to yours.  Praying you can find JOY in Him this season no matter your current circumstances!
 
*Photo credit to our waitress at Campo Verde in Arlington and our awesome shirts by my friend Eric over at www.TheShirtPrinter.com

I'm crossing my fingers and pushing publish.  It is hard to proofread through tears and my grammar and spell check guy is at work today (on Christmas Eve)... some people are getting a new Infiniti tied with a big red bow!

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26 October 2015

Hope and Rain

Growing up my dad frequently talked to us about the overuse of the word love and how that watered down the meaning of it when we said it.  Even more importantly how we should be careful who we believed when they said it to us (especially in those teen years!).  Several years later when my nephew was about 4, he and Dad walked into the McDonald's bathroom and my nephew declared, "I just love these kinds of toilets!"  He was referring to the line of urinals.  After that moment my Dad starting using that story as his example when someone else overused love or used it incorrectly.  David and I have worked hard to teach our kids that we love people and we like or enjoy things like brownies, burgers, visits to the beach, and even public urinals!  It's very important to us that one day when someone else tells one of our children that they love them, we want them to verify that its true and not just something they are saying because its easy and normalized.

A few weeks ago at BSF, the teaching leader talked about how we don't use the word hope the way God intended for it to be used.  We shouldn't hope to win the lottery or hope it doesn't rain.  Biblical hope is NOT wishful thinking, it is realistic, it realizes that we are broken in a broken world.  Hope is certain and unwavering based on His ability alone.  It is unshakeable when centered on His character and if I despair it is a clear symptom of my misplaced hope.  Hope in God and His promises should propel and sustain me.  My toes were stomped on or like our pastor says, I think she was a little too much like Mr. Rogers and all up in my neighborhood.  It was time for David and I to evaluate our use of the word HOPE.

Do you see an endless Hope or a hopeless future?  (Just let that sit with you a moment.  I think your thoughts or worries of the right now will give you the answer.  Know that faith doesn't erase doubt, insecurity, confusion, or hurt... it will overcome them.) 

My endless hope is found in Jesus Christ and I hope the way I live shows that in my day to day.  I have to give myself the permission to trust God to use me as I hope in the eternal future He has promised me.  God knows.  I got this card in the mail a month or so ago when I had hurt my back and had another blown blood vessel in my eye and I was struggling in my day to day.  I took a picture of it so I could use it when I wrote my next post... I wasn't sure what that needed to look like yet.  I put quite a lot of prayer into these posts.  I also had no idea how much the saying would mean to me now since we lost my Dad.

When we were planning my Dad's memorial service we knew that we wanted it to be evangelical.  We wanted everyone that attended to know the same Jesus that we know and follow that gives us hope in these very grim days.  The pastor said, "Well, I keep a message of hope prepared that I would like to share since I've talked with your Dad and know that he had his hope for a future rested in his relationship with Jesus."  That's exactly what we wanted.  1 Thessalonians 4:13-14 The Message (MSG) says, "And regarding the question, friends, that has come up about what happens to those already dead and buried, we don’t want you in the dark any longer. First off, you must not carry on over them like people who have nothing to look forward to, as if the grave were the last word. Since Jesus died and broke loose from the grave, God will most certainly bring back to life those who died in Jesus."  So we have a hope that promises that we will see my Dad again in heaven.  We can grieve.  As a matter of fact, we wouldn't grieve his going on to heaven before us if we didn't love him so deeply and miss him so very much.  Grief isn't wrong, its normal and natural and it hurts!  Give thanks IN all circumstances, not FOR all circumstances is what we are taught later in 1 Thess. 5:18.

I'm trying not to be ashamed of my sheer exhaustion and my endless tears.  I need to see it as an opportunity for Him to take charge and give me real rest and peace.  I'm trying to follow the instruction in Psalm 42:11 to "put your hope in God, for I will yet praise Him, my Savior and my God."   If you are praying for me will you please pray Romans 15:13 that says, "May the God of HOPE fill you with all joy and peace as you trust in Him, so that you may overflow with HOPE by the power of the Holy Spirit."

Kirstyn sang this song by MercyMe at camp this summer and then decided on the way to Arkansas that she wanted to sing it at her Pappy's memorial service.  When she started crying and couldn't get the second verse out, our sweet James (that never sings!) sang every word from the front pew at the top of his lungs until she collected herself and finished the song.  We are so proud of the young woman she is as she matures in her relationship with Christ.  So we will continue to pray... Jesus, Bring the Rain!

Here is the link to Kirstyn singing this summer!

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14 September 2015

Blizzard

I was recently challenged to look at my life and I hope that you will take a quick look at yours.

In his book A Hidden Wholeness, Parker Palmer relates a story about farmers in the Midwest who would prepare for blizzards by tying a rope from the back door of their house to the barn as a guide to ensure they could return safely home.  These blizzards came quickly and fiercely and were highly dangerous.  When their full force was blowing, a farmer could not see the end of his hand.  Many froze to death in those blizzards, disoriented by their inability to see.  They wandered in circles, lost sometimes in their own backyards.  If they lost their grip on the rope, it became impossible for them to find their way home.  Some froze within feet of their own back door, never realizing how close they were to safety.

I don't know about you, but many days my life feels like a blizzard and on other days, the sun is out.  Sometimes I just stay in the house refusing to face the storm or deal with the cold.  Other days I step out a few steps and go right back into the house because I don't trust the rope that I have in my hand to make sure I can get back safely.  There is probably a really fun party taking place out in the barn, but I'm just too cautious to even risk getting over there.  It really is too bad that I can't control the blizzards that hit my life. 

When I studied the life of Moses last year, I learned that each day when I wake up I have a simple choice to make: 
Will I choose to be like Moses and follow God?
Will I choose to be like Pharaoh and try to be God?
Will I choose to be like the people of Israel and focus primarily on my circumstances?

The challenge I was presented with is this:  What threads join together to make up the rope that will guide me back home when an unexpected blizzard hits?  I think its obvious what the answer should be... fantastic family, close friends, my faith, time in scripture, prayer and praises... but do I have all that?  I think the answer is yes, I have those people and times in place.  BUT I don't think they would know when the storm actually hits!  In this last four years, I have started to perfect the art of appearances.  I can make it look like all is well, even to the people that live with me!  If I decide to unleash the storm in my head would it make the people around me anxious, worried, or just stressed.  Where is the good in that?  Would I prevent everyone else from being productive... even if it is just for a moment.  In reading this story and being asked this question, I found myself thinking... do I even have a rope?  Do I even need a rope?  If I have a rope, will it even hold me if I fall down? (Everyone with extra weight worries if the rope will really hold? right?!?! #PlumpProb )  If the storm gets worse, do I even care if I freeze right on the back porch?  OR maybe I'm trying to be optimistic like everyone says I should... It'll get better, I will be fine.  I don't know, I'm just thinking out loud. I'm trying to get to a place where I'm not scared to dream and be optimistic although deep inside I'm still basically a sarcastic pessimist!  



So my current challenge is this, hold on to the rope and make sure it is stronger before the storm knocks me off of my feet and tests its strength.  The biggest challenge, I can't strengthen the rope without being vulnerable!  In Matthew 18, Jesus says, "I tell you the truth, unless you change and become like little children"... no one is more vulnerable than a small child.  What am I really willing to do?  You?

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01 June 2015

Bucket List

In the young adult cancer community I've heard the term "Bucket List" many many times.  Even on the first season of the show Chasing Life one of the characters (Leo with Brain Cancer) acts like the Robin Hood of last wishes for his friends in his cancer support group.  It is so emotional to watch these young adults experience their last wish.  The entire movie The Fault in Our Stars is a final bucket list wish being granted. Granting wishes looks like so much fun, but on this side of my diagnosis wishes can be very intimidating!

Bucket List is defined as a number of experiences or achievements that a person hopes to have or accomplish during their lifetime.  It comes from the term "kick the bucket".  So do I have a bucket list?  NO.  Did I think for a while that I should make one?  Absolutely.  Making one feels so.... so final.  I like the idea of dreaming and I honestly need to be encouraged to dream and escape my day to day stressful details.  Yet at the same time I can't stand the thought of leaving this earth with an unfinished list for my family and friends to see.  I don't plan to have regrets when I die so I also don't want anyone looking at a list wishing they had help me do something or visit somewhere.   So for now I will just try to dream and accomplish those dreams one tiny plan at a time.  I want to continue to realize my destiny knowing that everything God does for me, to me, and through me will help me determine what that looks like.


While I'm on the subject, I'm looking back at the past 4 years.  Just 4 years ago was our last day as a family where cancer was not part of the story.  Tonight is the anniversary of the night that changed so much for us and helped us really take note of what's important.  I came very close to death and I didn't have a bucket list... if I had, I know that this list of adventures from the past 4 years should have been the bulk of it:
  1. See Kirstyn get baptized.
  2. See James ask Jesus to be his Lord and be baptized.
  3. Go to James' kindergarten graduation.
  4. Strengthen my marriage (I think we are ready for a lot less of the negative half of the marriage vows of worse, sickness, and poorer!).
  5. Go away for a weekend with David (We had not gone anywhere alone since our honeymoon in over 10 years of marriage except for one business trip and a couple of weddings if those count!!!  Actually I guess we still haven't but we are at least planning a getaway for our 15th.)
  6. Sponsor a child somewhere (We now have loved on 3 kids in Haiti).
  7. Go to Haiti and see how God is working there!
  8. Build a real sandcastle!  (Sandcastle building lessons are fun!)
  9. Be given a nickname... My week as Moonshine was amazing.
  10. Go kayaking!
  11. Make new friends (close ones!)
  12. Teach the kids to love GIVING as much as getting.
  13. Learn to Hula Hoop!
  14. Go to Disney World with my family.
  15. See kids learn to love reading.
  16. Watch Kirstyn find such joy in music (piano and singing).
  17. Get to know family!  (I have developed close friendships with family members that I am sure I had never spoken to or known before I got sick.)
  18. Start a business that we believe in!  (Ask us about Genesis Pure.)
  19. RELAX (translated: learn what's really important)
  20. Focus on the little moments and enjoy the day to day!

I look forward to our future and I hope to have many more years of adventures to report, but for this week I have school award ceremonies and parties to attend...

In case you are wondering David and I are trying to decide where we want to go in January for our 15th anniversary and how much money we can spend on that.  I personally want to go to CancerCon (Stupid Cancer's event) in Denver next spring and I want to figure out how to raise lots of money for First Descents so maybe just maybe I can go on another one of their adventure trips that also allows caregivers so David could get away too!  This year they offered a trip hiking in Iceland (WOW) so maybe one day.  While I'm dreaming we should probably take the kids to the Grand Canyon or the Smithsonian.

No matter what, I want to make sure I am living life in spite of this diagnosis! So since the month of May has come to a close.... please remember that Grey Matters year round!

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29 May 2015

Why Blog?

Why am I blogging?  That is a question that I've asked myself more times than I care to admit.

In all honesty, I started this blog for the sole reason to share pictures of us with my grandmother.  She and my grandpa were traveling all of the time but she really wanted a way to see pictures more often than every 6 months so I set up this blog.  It was a way for me to post random stories and pictures (mostly of Miss Kirstyn) and my grandmother could walk into any public library and hand the librarian my URL and she could sit and scroll through pictures and feel connected to us from as far away as Alaska.

Later, I discovered this amazing community of mommy bloggers.  I could read their stories and I even made a few great friends that I've never actually met in person, but will one day hopefully sooner than later!  I finally didn't feel so alone in my day to day tasks and we were able to share stories of our lives and relate to one another.  (This was WAY before I even joined any social media sites like Facebook or even Myspace!)  We have even exchanged gifts and cards and sometimes they feel closer than the people I greet in passing almost daily!

Then, I made up my mind that I wanted to drop some of this weight that I have carried my entire life.  Once again I found a community of support and I was able to type feelings that I wasn't able to articulate in person.  I read others struggles and triumphs.  I found recipes and was encouraged to attempt exercise.  I shared my struggles with the scale and my victories in the gym.  I was even featured in the Dallas paper after an author had followed my progress.

And just when I was coming to what I thought was then end of my weight loss saga, I had a seizure in my sleep and a week later learned that I had ...dun dun dun... CANCER.  Not just any cancer, brain cancer... one of the most deadly cancers that most people know nothing about and many seem scared to ask.  I have shared some of my raw emotions and we have been as open as we know how with this path that we were thrown on to walk.  (pssst... and you have probably watched me gain back close to 50 of the 100 pounds I lost.  Steroids, cancer emotions, church people food, exhaustion, and crazy hormones are mean to the body!)  My self esteem has been on a roller coaster that I don't remember volunteering to board!  Today, the kind older man tuning our piano asked about the family in a photo on my wall... I was taken back when I realized he was asking about a picture of me with David and Kirstyn.  I have been really hard on myself lately about my weight and his innocent comment made me realize how far I've come... physically, emotionally, and spiritually.  Still, it doesn't change the fact that I long to feel as good as I did exactly 4 years ago in that picture on the right.  There was 50 pounds less of me, but I was so na├»ve to all life could teach me in just a few so very short years.  And that girl on the left holding that happy little girl 11 years ago...  I'm not sure I even recognize her.

It makes me laugh that I named this blog Normal to Natalie long before I knew what my real platform even looked like... I guess I'm still not sure.  I do know one thing.  I want to update my website to be more than just a blog (I'm probably going to need to hire help!  Suggestions?).  I want you to get to know me better.  Meet the me that sells insurance and that has continued to educate myself and change my family's eating habits.  The me that did endless hours of research and decided we would use Genesis Pure to deliver so many essentials to our door every month.  It's easy, I trust them, and I dread shopping... oh and their products keep me going at a pace that helps me keep up with my crazy family.  And my kids, they are the best and in so many ways have been forced to mature and learn some really hard lessons.  I need/want/have been asked to share more about that and how we are all working through our day to day "extras" together.  (A blog about our commission system is in the works... promise!)

I at one time described myself as a busy wife and mom on a mission to get healthy inside and out through clean eating, Bible study, and exercise.  That's still very true and I hope you will join me as I continue to take this journey called life and share it as openly and honestly as I know how with you on this blog.  Maybe one day my platform will grow and I will be invited to speak and share my heart with a group that needs to hear from me.

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01 May 2015

Moses and May

Did you know that the entire book of Deuteronomy was likely recorded during the last 37 days of Moses' life.  So, Moses was able to share so much wisdom and knowledge and blessings with the people he had been mentoring and leading in 37 days yet here I sit with a journal for Kirstyn that I have been working on for 18 months.  The journal is even designed to be completed in just one year, but hers is only about half finished and James' isn't even started.  Maybe I should be thankful that I don't have that same sense of urgency that Moses had or maybe I need to spend more time on the mountain learning from God before I try to share my thoughts.  Either way, I pray that they are learning that when faced with adversity and challenges we didn't expect that we will not run in fear but face them but only after seeking wisdom through prayer knowing that "The Lord himself goes before you and will be with you".

The book of Deuteronomy ends with Moses praising God as he blessed the people and God praised Moses. Wow, what a legacy he left that we are still studying today.  I want to be remembered as someone who praised my God and I desperately want my people (Kirstyn and James) to be blessed.  I'm praying for all of us to have unshakable faith in the most unstable circumstances!

May is Brain Cancer Awareness month.  In May of 2011 we were seeing subtle symptoms that something was wrong but we had no idea what was about to happen and change everything for us.  Even looking back, the symptoms were never something that pointed to a brain tumor.  Actually, I've met many people that were just in their day to day when a first seizure changed everything.  Many weren't even having headaches.... me included!  I recently installed the timehop app and have been looking back on my facebook memories from that year leading up to my first seizure.  I wasn't sleeping well, I was stressed, I was frustrated, and nothing I said reflected that I was seeking God first.  I was just trying to survive in the day to day.  Honestly, I don't remember much and after looking back and after these 4 years of conversations, David and I have concluded that at least 2 years of my memories were taken.  I have rebuilt some with pictures and social media history and listening to stories, but there are still gaps.  I've stopped crying when I realize I've just spent an hour watching a movie that I've already seen and something triggered the memory so now I know the ending.

Next week on May 5th, I have a brain MRI and oncologist visit.  We will learn if this monster in my head is remaining stable.  Then, I 'get' to face my newest challenge (why isn't there a sarcasm font?!?!).  I found a "mass" in my right shoulder a few weeks ago.  Since then, I have seen a couple of doctors and had an MRI on my shoulder.  (I swear I'm going to stick to my refrigerator at some point!!!)  My oncologist then scheduled me an appointment with an orthopedic specialist so I see him next Tuesday too and find out what's next for my shoulder.  I'm doing my best to give my fears to God but that hasn't been easy...  I'm praying for a simple and fast solution to the pain in my shoulder and arm that is being caused by this cyst.  Cinco de Mayo for us will be a long day of doctors and evaluations for me and we desperately need your prayers.

This month I want to raise awareness.  I want to accomplish something new.  I want to give thanks for all of the opportunities that even my struggles bring.  I want to see my faith overcome my fears.  I don't want to be what's happened to me, I want my hope to be contagious!  Help me show that the grey ribbon is important too!  You can buy this year's shirt and you can post on social media using the hashtags #normal2natalie and #greymatters










Because MyGreyMatters!
Deut 31:6
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18 February 2015

Influence

Don't get so caught up in manufactured drama that you forget to enjoy actual reality.  If you don't control your media then the media will control you.  Thoughts like this are running around in my head right now. 

David and I are taking a Re-Think Parenting class at church where we are hearing staggering statistics like the porn industry made 96 billion dollars last year while the NFL made a mere 9 billion.  In addition to that if you watch close you will see that every tv show, book, and movie has some kind of agenda.  Sometimes the agenda is hidden and sometimes it is more than obvious.  Is this going to be a lecture.... NO.  I just started thinking about the influence that things like books and movies have had on me and my character.  We are also thinking about what we are allowing into our home to influence our children.

So like every good researcher (ha!), I turned to Facebook where I asked my friends the following question:  What movie would you say had an influence on you (good or bad) as a child, teen, or adult?  In many cases the same movie was named several times.  Saving Private Ryan, The Shawshank Redemption, or The Sound of Music... anyone?

Then last night ABC aired a special countdown to the Oscars show called "15 Movies that Changed American Cinema"  We enjoyed the way they organized the movies by their impact on the big screen and our culture.  How many have you seen?
 
Here is our summary version of the countdown:
15.  Toy Story (computer animation)
14.  16 Candles (teens playing teens)
13.  A Hard Day's Night (music video/Beatles)
12.  Jaws (musical score/scary/changed the movie calendar)
11.  Lilies Of The Field (Sidney Poitier/black actors)
10.  Godfather part 2 (sequels)
9.  I'm No Angel (Mae West/sex symbols/woman in charge of sex life)
8.  Easy Rider (indie films/Jack Nicholson/movie for a generation/rock n roll/drugs/challenged movie studios)
7.  Birth Of A Nation (first full feature length blockbuster/showed at White House/first film to make us feel things that were wrong)
6.  A Streetcar Named Desire (Marlon Brando/leading man/method acting/emotions while acting/first to win 3 out of 4 acting oscars)
5.  2001: A Space Odyssey (birth of a sci-Fi genre)
4.  Psycho (violence to a shocking new level/scary/reinvented horror/first toilet flush in a movie)
3.  Snow White And the Seven Dwarfs (started the animation craze/hundreds of artists and animators/changed view of animation)
2.  Gone With The Wind (epic love story/everything was big/changed how we view of romance in movies/won 10 academy awards/first black woman to win an Oscar)
1.  Star Wars (original stretch of the imagination/great characters/influence/1st movie to extend the movie experience beyond the theater/merchandise)

I have movies that helped shape me and my opinions in several stages of life.  Yes, cinema has shaped not only my culture, but some of MY thinking.

Old Yeller and Where the Red Fern Grows both taught me about loyalty and love even when it comes to a pet.

Lion King showed me another angle of the love and redemption story offered in the Bible by Jesus.

The Goonies made me want to go on adventures... even dangerous ones.

The Cowboys with John Wayne taught me about death.  I remember crying and crying when he died just like he was a member of my family.  This quote from the movie speaks volumes, "Death can come for ya any place, any time. It's never welcomed. But if you've done all you can do, and it's your best, in a way I guess you're ready for it."  I also remember how mad my mom was at my dad for letting us watch that movie as she had to watch us morn John Wayne for days!

Steel Magnolias taught me about the importance of friendship!  Everyone needs someone like Clairee that will say, "I love ya more than my luggage!"

Saving Private Ryan, Schindler's List, The Help, The Butler, Braveheart, The Last of the Mohicans, and The Passion of the Christ all taught me things about history that I had read all about, but seeing it on the screen personalized it even more.  There are so many different profound lessons and emotions in all those movies.

Now that I've been forced into this world of cancer and raising young kids at the same time I have found myself more careful about the stories we watch on the big screen.  Until you are living with cancer or watching a loved one walk that, I think we miss some of those loud messages.  Sometimes the mom dying of cancer theme shows up in places you weren't expecting it.  For example, I was shocked when it was in Rise of the Guardians.  I mean I was expecting an action movie!  I blogged before about the movie God's Not Dead and its cancer story.  Read that one here!

Movies also trigger conversation that we need to have but haven't been able to articulate.  The timing of our family watching We Bought a Zoo was perfect.  Our emotions were all very raw but at the same time I needed a way to talk to Kirstyn about what she was feeling and how she was acting.  She was really struggling with walking a fine line of fear and anger while dealing with my grim diagnosis.  That movie and the boy's attitude toward his dad after loosing his mom helped us both be able to better articulate what she was feeling and correct how she was acting toward me.  It was emotional and raw around here, but after we worked trough much of that together and while clinging to each other and scripture we were able to watch it again and enjoy it a little more.


Then later, David and I rented Safe Haven.  We knew it was a movie that was designed to bring emotion out but we thought it was more about abuse.  When that movie ended I spent hours on the kitchen floor sobbing so hard I could barely breath.  It was a long time before he gathered himself so that he could sit in the floor with me and hold me tight.  I own that movie now and have re-watched it once....  I will again.  It motivates me to journal and write to the kids.

So, I'll ask again... Are you controlling your media?  More importantly what do you filter your media against?  For me, I want to make sure that what I am seeing and feeling is filtered against the Promises that God has made me in His Word.  Like they kept saying that the IF: Gathering I attended.  Even if I feel like a grasshopper facing giants, I want to be willing to step forward in faith knowing I am ultimately SAFE in Him.  What changes Fear to Faith is the position of God in my life.  In Numbers 13 and 14, Joshua and Caleb were saying the same thing as Benjamin in We Bought a Zoo, "insane courage will lead to something great"!  I want to continue to have faith bigger than my fears...  Sometimes God even uses movies to teach me.

I know this blog was all over the place but I want to hear from you too.  Tell me what movies have influenced you.... I might need to add it to my watch list!

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22 November 2014

Brain Cancer took...

"When we are no longer able to change a situation, we are challenged to change ourselves." ~Victor Frankl

Brain cancer took my quick wit, but forced me to look deep into myself and write things I couldn't speak.

Brain cancer took my ability to read novel after novel, but not my love of escaping into another person's thoughts, dreams, and trials.

Brain cancer took my stellar concentration and ability to remember all the small details, but not my love of learning.

Brain cancer took me into a fight that I was not interested in fighting, but not my determination to learn new lessons in the moment.

Brain cancer took everything and nothing all at once, but forced me to embrace changes in myself and my family that needed to be made.

Brain cancer took some of my long term dreams, but made me determined to focus more on the daily moments.

Brain cancer took my determination to do everything I could under my own power, but not the daily reminder that I need to be working under HIS power.

This list is not full of regret, but determination.  I want to use this awful trial to help others in their situations.  It might be as small as helping someone believe that they can complete an exercise class or as big as one day being given the opportunity to share my experiences with a large group.  Most importantly I want my kids to know the me that they aren't mature enough yet to understand.  I write here and I'm determined to journal privately for them.  I've been praying more for the opportunity for a larger platform... I'm just not sure what that looks like, I just know it's on my heart.  Pray with me and even help me find the right stage with a willing audience.  I think I have finally reached a place where I can believe that my most effective ministry can come out of my deepest hurts, but that can't happen until I'm willing to be more open and available.  "You yourselves are our letter, written on our hearts, known and read by everyone.  You show that you are a letter from Christ, the result of our ministry, written not with ink but with the Spirit of the living God, not on tablets of stone but on tablets of human hearts." 2 Corinthians 3:2-3

I have also decided that it is time for me to adventure back into books!  I saw a quote that said, "We lose ourselves in books, we find ourselves there too." Even more convicting was when I read "A reader lives a thousand lives before he dies.  The man who never reads lives only one."  There is really so much truth there. 

First my biggest excuse was that radiation stole my short term memory.  Reading novels became more work than fun because by the time I reached chapter 3, I had forgotten some of the details that I had read in the first two chapters.  The night of my seizure, I had read more than 200 pages of a novel that I get frustrated trying to finish because it was book 6 of a series and I can't remember any of them!  Since my brain surgery, I have read THREE books.  It is embarrassing to admit that in three years I have only read three books for myself.  Maybe I would feel better if I counted the Nancy Drew, Bernstein Bears, Veggie Tales... no, those are for the kids to learn this beautiful adventure into learning that is reading.  Two of the books that I read were other people's stories of challenges and were both very therapeutic for me, but not an opportunity to escape from my thoughts.

Second, all of the seizure medications make concentration incredibly difficult.  In the past if I was engrossed in a good book nothing could pull my attention from that paragraph.  Now I find myself in a constant joke of "squirrel!" when it takes almost nothing happening around me to change what I'm doing and thinking and even more frustrating cause me to go back and repeat the last several moments again as if never happened.  (If you don't get the squirrel joke, you need to watch the movie UP or this clip http://www.youtube.com/watch?v=OxYYPziLdR4!)

More recently my health has become a battle with my eyes!  Apparently some of my mini seizures have forced the blood vessels in my eyes closer to the surface.  When I add that issue into the fact that I really enjoy weight lifting I've had to learn to live with burst blood vessels.  My right eye has had a few of these lately and I have had to make some adjustments in my exercise since I am not a fan of feeling like I have sand in the corner of my eye while that blood vessel heals. (I don't want to talk about the conversations I have with my oncologist and her nurses that always sound like "It is rare that anyone with what you have feels like doing that much")  Then for the past two weeks I have had a swollen left eye with unbelievable pressure.  After seeing my oncologist, an ophthalmologist, and my primary care physician it turns out I just have an ear infection and infection in the sinuses around that eye that made my eye bright red and full of pressure.  I have amazing vision and until the last few months never realized how exhausting a minor eye issue can be.

Reading gives me somewhere to escape when I've had all the reality I can endure that day (and have obviously already been to my Bible and the gym!).  While I do not enjoy change I am realizing that in order to get back to my love of books, I'm going to have to make some changes.  I think the time has come for me to give audio books a chance.

"Progress is impossible without change, and those who cannot change their minds cannot change anything." ~George Bernard Shaw

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09 August 2014

A Simple Knot

"The best journeys in life are those that answer questions you never thought to ask." ~ Rich Ridgeway.  Before I left for my trip with First Descents, my amazing dentist gave me a card with that quote in it.  I remember thinking... wow.  I hope that is really true for me on this trip.

When I applied to go on the First Descents trip, I just knew for sure that I needed to meet other young adults that were willing to live life in spite of cancer.  I needed to know that there were others that were not interested in just sitting on their couch angry about their circumstances.  Their promo video made me cry.  It made me realize that even though I keep trying, I'm not really living life like I was before the diagnosis.  I'm weak, needy, scared, confused, angry, frustrated, lonely, and desperate for a truly "normal" life!  Thankfully, I believe in a God that is real and he loves me even when my pride and overwhelming sense of entitlement get in the way!

I really had no idea how much this trip would help and impact me.  Just riding in the car from the airport looking at the amazing views in Montana and listening to the others talk about what their nicknames should be started to overwhelm me.  I've NEVER been anywhere alone... I've always been with a friend or family - an now, these people would not even know my real name - only a nickname!  I've also never had a nickname and didn't know how to create or pick one.  We drove up at the lodge and Chia, Yak, and Q all had their nicknames... I was just trying not to cry.  I felt so overwhelmed knowing I was about to be doing a whole lot of new stuff and was feeling a bit guilty for leaving my family behind to do this selfish trip for me.  After meeting with the doctor and nurse, my nickname evolved and I became known as "MoonShine".  Suddenly, I didn't have to be anyone for anybody.  I wasn't a wife, mother, daughter, sister, cousin, or friend - I wasn't even a cancer patient!  I was MoonShine and I was going to learn about kayaking along with a dozen others that had never tried this and we were getting to learn from some of the best in the world.  I was no longer putting the pressure on myself to chase normal for everyone around me!  I was overwhelmed with relief, yet again fighting tears, and nervous about having to be alone with my thoughts.

I have to admit that I was terrified by the whole adventure experience.  I wasn't scared of the water, of having to swim, or even of drowning (I actually had a scary experience during a swim in the rapids but that is another story!).  Turns out my issue was one of TRUST.  I had to trust others to flip my kayak back over when I managed to get myself upside down.  I had to trust that if I had a seizure that they could help me.  I had to trust that my slow learning and small failures and short term memory issues might be an inconvenience, but everyone had some kind of issues.  I just kept having to remind myself that I was kayaking with people that are experts at this sport.  Professionals that lots of people spend big money to work with out on the water and to continue to make this fun for me and minimize the risks, we also had a nurse and ER doctor kayaking right along beside us.  I could not have dreamed up a safer environment to take risks and learn to live life in spite of cancer!  "What could possibly go wrong?"  ~PK

In our off the river time, I really enjoyed hearing every one's stories.  We talked privately about diagnosis and how the cancer was found, about how it changed the people around us, about how treatment was different for everyone... many of us agreed radiation was worse than chemo.  I learned about other resources for young adults with cancer.  I decided I want to find a way to be more involved.  I need to make sure that one less person feels alone in this diagnosis.  We spent lots of time laughing at some really stupid things... have you read the directions on the toothpick box lately? 

I also spent LOTS of time in the kitchen watching our amazing chefs work.  Feast your eyes on just a few of the amazing meals they fed us.  Everything was made with fresh, local, and organic ingredients!  Just in case you have time to plan your last meal in this life, I am facebook friends with these kitchen superheros!

 

When I tried to fall asleep at night, my thoughts would stream through all of the 'what ifs'.  What if I can't maintain this happy normal life I have so desperately worked to rebuild for my family.  What if I invest time and money in learning something new that I won't get the chance to use?  What if I have to smash my safe little box where I have so carefully placed us.  What if it is really okay for me to have fun and not take everything so seriously while going over all of the worst case scenarios. 

I am forever thankful for my week as MoonShine.  I was able to realize that since being diagnosed with cancer that I have been so incredibly busy being normal for everyone that I have managed to forget that I'm important too.  I don't have to stop dreaming so that I can be realistic and cautious so that everyone around me can continue to dream.  I will dream too and I have a new village of friends that also hate cancer and love life!  My new FD family reminded me that we should all challenge ourselves and continue to dream. 

Stitch, I will sign up for a random class to teach me something new!  Yak, I will laugh more.  Cookie and Cowboy, I will look into StupidCancer.org and hopefully see yall there.  Choppa and Skillet, I will read more warning labels, laugh hysterically, and wonder if yall have called the 1800 number to find out what to do with your used toothpick.  BlakeFish, I will play more card games.  Habibi, I will try a new fitness class.  Starfish, I will be more consistent (maybe!) with my blog.  Doodles, I will be a better listener like you.  DJ Rob, I'm going to have a dance party with my kids in my living room!  Papa T, I'm going to appreciate my family, our Texas sun, and avoid COLD water.  Cheerio, I will find new sports to challenge me and keep trying when I fail.



I will write a bucket list.
I will try to silence the negative what ifs by replacing them with new adventures!
I will look at the string on my left arm and remember that I have more support than I can comprehend.  I will let it remind me that MoonShine has to stop being so cautious and be willing to try new things that might lead to failure, adventure, lots of laughs, and more!

I will choose to live today as a child of the King.  I am loved, my eternity is secure, so I can dream.  I will dream!  Psm 63:4 says, I will praise you as long as I live.

"When you come to the end of your rope, tie a knot and hang on." ~ Franklin D. Roosevelt

FD staff and volunteers, thanks for throwing me a rope with a knot already tied!!!

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01 June 2014

3 years

3 years.  I cannot believe that it has been 3 years since the seizure that changed everything.  It is amazing to me, looking back on our life these last 36 months, how God has strengthened us, humbled us, and changed us.  Yet at the same time, there are instances where we I try to get through things on our my own.  Which can sometimes (OK...100% of the time) lead to mistakes, heartache, hurt, and stress.  We are human, we are messed up.

But most importantly...we are loved!  After all I have done in my life, my Savior loves me.  ME.  And he loves my wife.  My kids.  Our families.  Our friends.  And sure we could be bitter and spiteful because Natalie has cancer.  I know plenty in life who are.  But that is not what we are called to do, to be.  We are called to be "MORE THAN CONQUERORS!  (Romans 8:37).  To be different.  And I am not perfect at doing this.  In fact, far from it.  It is hard.  But the great thing is God takes the weak and makes them strong.  He takes the small and lets them face giants.  And win.  I take comfort in the fact that God has surrounded us with prayer warriors.  And he surrounds us with his presence on a daily basis.

So as I look back on the 3 years since the start of our new life, I thank God every day for Natalie, and for giving her the strength to move forward and to fight, even when she didn't/doesn't feel like it.  For being there for our kiddos.  I can't imagine my life without her, and I am amazed everyday by her fight.  She is absolutely incredible.  And I wish I told her that more often.

Also, I want to say thank you to our friends and family for your prayers and support.

To the organizations we have found since the diagnosis, thank you! 
Brain Power 5K and the Run for the Rose for allowing us take part in your fund raisers and be encouraged when surrounded by other survivors with their support systems.
Gregg Pearson Foundation for your friendship and spiritual support team.
Also the newest organization First Descents that will take Natalie for a week long adventure trip this July and help her remember to live life beyond the diagnosis.

But most importantly, I want to say thank you Jesus, for standing by us, and protecting us.  For lighting the dark path, and leading us to where we are today.  May we never stray from this path.

God meets us where we are, and when bad things happen, can help bring us out of despair.  Pain and hurt will still happen, but there can still be joy in the midst of pain.  Though we are fighting cancer, we are truly blessed and thankful.

Remember...Grey Matters.

~  David

16 April 2014

Keep watch with me.

If this blog is the only way you are following our family, my cancer story, and getting prayer requests, then I'm sorry that I am not updating.  I value your prayers and comments but you should probably send me a friend request on Facebook.  I have had so much that I wanted to sit down and post but other things take priority and then it always seems outdated to go back and post it.  For example, at this point I can guarantee that I won't be posting a 2013 year in review Christmas letter.  Maybe I should start on this years in order to finish it by December!  *This post is about as raw and real as I get.  I will probably sleep great tonight now that I've shared so please don't let this cause you to miss getting your rest!  Thank you for your prayers and for allowing God to use you in my life when I needed you most. 

If you are taking the time to read this, then I want to ask you, "Will you keep watch with me?"

Each time I read the story of Jesus' death and resurrection, He teaches me something new.  This year so much has touched me, but the main theme beyond His sacrifice and defeat of death has been the people in Jesus' life.  His family and friends that had to deal with his death.  I know they wanted more time with him on earth.  When Jesus knew His death was approaching, He went to spend time alone in prayer, but first he said to his closest friends, "Sit here while I go over there and pray.  My soul is overwhelmed with sorrow to the point of death.  Stay here and keep watch with me."  (Matthew 26:36-38)

Overall I have been well, but this week has been hard.  This time last week a blood vessel burst in my right eye.  My brain tumor is on the right side so my imagination is amazing when it comes to all the horrible things that could be going on inside my skull.  Also, this burst blood vessel is like having an eyelash stuck in your eye for a solid week.  Reading, writing, driving, watching tv, and even rolling my eyes seems more difficult than it should be and when all that is put together into a regular day I am exhausted just trying to be normal.  Don't forget that my imagination is still working overtime so even with much prayer I have not had enough rest.  I am exhausted.  I know that none of life is easy and I try to be hesitant to complain or even post prayer requests (just trust me that I do filter LOTS), because I can simply look around me and am reminded that I should just be grateful.  I can take the time and pray for children dealing with the same cancer as me and that puts everything back into perspective.  Keep watch with me.

As I consider worst case scenarios, it makes me be more productive when it comes to the journals I am working on for Kirstyn and James, but at the same time some very real loneliness is amplified in my life.  I have lots of days that I want to share my fears, but don't want to burden anyone.  I have lots of friends, but no one really close.  (Maybe some of the close friendships I see around me aren't any closer than people are to me, but just appear that way?)  I know that is mostly my fault, but sometimes I long for someone close that just gets me.  I have noticed that as I need people, God just puts them into my life for the first time or back into my life after years apart in different seasons of life.  I can go back and list a need and see the person God put there to meet that need.  Even last week when I mentioned being worried the tumor caused this blood vessel in my eye to a friend, she mentioned to me that she has the same fears creep up when she gets a headache.  She even said when she mentions it to others they just don't get it and she's assured she is overreacting.  Again, it seemed silly how alone I had been feeling because I'm not alone in those fears and God put her there for me to hear that.  She was just in time to keep watch with me.

I follow several brain cancer research sites and I read a statistic a few weeks ago that I have read before, but it hit me harder (everything is louder when I'm exhausted... I know):  Only 30% of people diagnosed with brain cancer live more than 5 years past diagnosis.  I am almost to 3 years.  Basic math tells me that the odds are not in my favor.  A 70% chance that I have less than 800 days to teach my babies and love my family.  Yes, I really do think like this (I used to like statistics!!!), but I don't dwell on it... I have laundry to do, dinner to cook, kids to taxi, and even a blog to write (ha!).  When I mention things like this, the people around me usually reassure me and we move on... I guess sometimes I just wish someone would panic with me.  It isn't always easy to just be reassured and move on with day to day things.  In the Bible studies I have been doing, I have been reminded that my eternal life started the day that I asked Jesus to be my Lord and I should live like that.  Psalm 118:17 says, "I will not die but live, and will proclaim what the Lord has done."  Keep watch with me.

I went to the movies this week with another good friend of mine and we saw 'God's Not Dead'.  We thought it would be a good faith building "break" from our day to day stresses.  (We were wrong... God has a sense of humor.)  If you haven't seen it yet, you should go.  There were many people in the movie dealing with difficult relationships, aging parents, and even cancer, but my biggest and most real fear was the main character of the movie.  The man that wanted to push his belief that there was no God was raised in a Christian home but had become that person because of what he had experienced as a child.  He had watched his mother die from cancer when he was only 12.  He refused to believe that even with all of his prayers of pleas for her life that a good God could ignore him and kill her with such an awful cancer death.  I found myself wondering, if his mom believed so strongly in God and her son knew that, then where were her friends after she died to tell those faith stories to her doubting and angry son.  I wonder who will pull my babies out of that pit of bitterness and hate if they fall in when they have to watch this brain cancer kill me.  Keep watch with me.

When I am lonely, I know this:  Jesus was far lonelier than I will ever be and endured it so that we could know Him.  In Matthew 26:36-38, Jesus reached out to his closest friends to keep watch and pray for him but they too were tired.  They were also confused and probably didn't understand just how little time they had left with him...  I like that he wasn't aggressive or needy or dramatic.  Jesus just simply said to his closest friends, "Stay here and keep watch with me."

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10 May 2013

Lifting Weights


I don't want to bound or limited by my diagnosis of brain cancer.  I don't want to make major decisions based on whether or not the remaining tumor could cause another life altering seizure or worse.  I want to trust that my God has amazing plans for me and my family.  I want to raise awareness and see more compassion, funding, and sensitivity toward people just like me.  I've had people question if I really did endure 18 months of chemo... Lots of ignorant statements like, "But you still have your hair" and "everyone that does chemo has their hair fall out" and "you don't act like you have cancer".  Really?  Have cancer patients really been placed into such a small box.  Why do I feel like the powers that be built that box.  Sometimes I find myself jealous of the fact that on any given day you can walk into target and purchase a pink ribbon tshirt. 

*** UPDATE FOR CLARIFICATION 12 May 2013***
The more I review my blog post in my head I feel like I should clarify some of my thoughts. Yes, I actually do spend time reviewing my thoughts, words, and writings each day as I'm trying to go to sleep.  I've always had an amazing memory for being able to quote what I've read word for word even days later.  I can't do that any more, but I can remember most of what I write and I do judge myself rather harshly sometimes.  This time I am relived to be clarifying myself. 

I am so very thankful that breast cancer awareness is everywhere. When a cure is found thanks to all the funding and research I pray that some of that knowledge will translate to other cancers like leukemia that took my grandmother or pancreatic cancer that took a friend and especially pediatric cancers that take too many dear children way too early. I lost a dear friend to that terrible disease of breast cancer and I pray for her 3 daughters all of the time. I have two shirts that I bought because of her that I wear from time to time to be reminded that life is short and she made the most of it. I also have a close friend that was a bridesmaid in my wedding that lost her daddy to breast cancer. And even today as I type this I have an aunt and a great aunt on my dad's side of the family that are fighting breast cancer and yet another encourager in my life that is currently in remission from this horrible beast. David has a t-shirt that says "Save Second Base" that he wears all the time just to watch teenage boys react. We bought that in support of a friend walking in the SGK 3 Day probably 10 years ago before that disease had ever even touched our friends or our family.

All of that to say, if I'm still being honest, I feel guilty admitting these feelings of jealousy and fear that more awareness and funding is not being put into brain cancer. Brain cancer is a terrifying illness that most patients would just like to survive long enough to die from something else (especially me... I don't want my mind to go before my body because I don't want my family to have to endure that!). Did you know that this year alone 70,000 people in the U.S. are expected to be diagnosed with a brain tumor? There are already over 120 different types of brain tumors identified. Right now only 32% of brain cancer patients make is past the 5 year mark from diagnosis. And sadly or maybe thankfully, due to lack of funding, brain tumor "facts" will change as more funds are raised and more is learned.
*** THANKS FOR READING THIS IMPORTANT MESSAGE FROM ME ***

With that all said, May is Brain Cancer Awareness Month.  Please help me make the Grey Awareness Ribbon more recognized!  This is my current facebook cover photo.


While I'm talking decision making that has to revolve around my cancerous tumor I will tell you that David and I would really love to visit Haiti with my church on a mission trip in October.  We need to make the final decision very soon so that we can pay money toward the trip.  My next MRI is next Tuesday, May 14.  We meet with my oncologist later that day for the results (please read my last few blog posts).  More to come on why Haiti very soon.  James' is planning to collect Spoons for Haiti from his friends for his 6th birthday party and we are excited to see our little boy make a big difference.

So, who wants to help me raise awareness for brain cancer AND help pay a few of my medical bills so that we can pay for the mission trip IF when we get the okay from my oncologist.  Thanks to my awesome friend Eric over at TheShirtPrinter we have a new grey ribbon design available to print!  The best part is that you have lots of choices and all prices are a suggested minimum donation!

$20 - Regular Gildan Brand Tshirt in just about any color you would think to reguest (Kirstyn picked bright orange)

$23 - Dry Fit Heather Women's fit (I'm wearing a red one) or Men's Fit - these are 100% poly so have a silky feel and make a great work out tshirt!  There is a bit of a sheer to them too.

$12 - Just in need of a great draw string gym bag in a variety of colors.... we have that option too!  I can't wait to get my hands on one for me to use every single day.

Please email me, message me on facebook, or text me with your order and we can discuss money details.  I can even take paypal donations.  To save on printing costs we want to try and only do one run so I want to keep orders open for a couple of weeks. 

This design really means lots to me and I hope it inspires you too.  Who knows, maybe someone will ask you what the grey ribbon stands for and you can be the one that raises brain cancer awareness!


"So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand." Isaiah 41:10




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27 February 2013

Scanxiety

Well, I have to say that timing is everything and with God it is Perfect.  At church our pastor has been preaching a series on Fear.  I've learned that there are two kinds of fear.  One kind of fear is described as Awe or Reverence.  The other kind of fear is one of apprehension, doubt, and dread.    During this study the verse Isaiah 41:10 has been used several times.  "So do not fear, for I am with you; do not be dismayed, for I am your God.  I will strengthen you and help you; I will uphold you with my righteous right hand."  I just keep thinking that I need to design a shirt to wear to the gym that says something like 'My God Lifts Weights' and reference that verse and put a barbell on there too.  Anyone else want one too if I design it and get my awesome friend at TheShirtPrinter to make it real?!?!

Anyway, yesterday was my Baseline MRI that I talked about in my last blog.  This morning we went to visit with my oncologist about all the details of "what's next".  I would be lying if I told you that I wasn't anxious about the results of the scan and about the unknown.  No matter the results or my oncologist's planning, the bottom line really is that I have to learn to trust the unknown to a known God.

Yesterday, right after my scan a friend sent me a text with her devotional from 'Jesus Calling' by Sarah Young and it was perfect for me to hear!
I am leading you, step by step, through your life.  Hold My hand in trusting dependence, letting Me guide you through this day.  Your future looks uncertain and feels flimsy -- even precarious.  That is how it should be.  Secret things belong to the Lord, and future things are secret things.  When you try to figure out the future, you are grasping at things that are Mine.  This, like all forms of worry, is an act of rebellion:  doubting My promises to care for you. 
Whenever you find yourself worrying about the future, repent and return to Me.  I will show you the next step forward and the one after that, and the one after that.  Relax and enjoy the journey in My Presence, trusting Me to open up the way before you as you go.
So, the question I am having to learn to ask myself daily is will I choose one of the natural responses of fight, flight, or freeze OR will I choose a Supernatural response based on Faith?  Honestly, I think the answer is all of the above.  I have been fighting with everything I have since my diagnosis.  They put chemo wafers in my brain during my surgery in June 2011, I then accepted the challenge of 6 weeks straight of chemo and radiation.  Then, 3 weeks later I agreed to a new chemo regimen where we quadrupled my chemo dose and I have taken that dose 5 days every 28 days for the past 18 months! 

Simply, based on today's oncologist visit.  My tumor is under control for now and has even shrunk some since the start of chemo 18 months ago.  Now the biggest challenge I am faced with is the eliminating of all of the drugs that I take regularly that are no longer a necessity now that I don't have to be on chemo. My favorite news is that I don't have to make weekly blood work appointments anymore.  So, bye bye to all of my nausea drugs, sleep aids, and pain medications.  The chemo that I have been taking basically since June 2011 listed the following as the first four major side effects:  nausea, back pain, weight gain, and sleeplessness.  Trust me when I say that there is a reason why many people have to attend an inpatient rehab facility to come off of some of these drugs!  I have been cutting back the past few months very slowly and I have still had some crazy dreams, night sweats, and major mood swings.  This will not be easy but I know how to cut back slowly and I have a detailed plan.  I will continue to take the massive doses of seizure medication (probably for the rest of my life).  That one causes drowsiness so I won't be giving up my coffee or spark any time soon!!!

I really want to drop some of this weight that I gained while in the hospital and at the beginning of this cancer mess when I was having to take massive doses of steroids.  Getting off of many of these drugs will help that process but I really do need some sleep...good sleep in order to make this weening process easier on my body and my mind!

Now, I really have to let go of this fight.  I'm such a planner and in spite of how incredibly hard all of this has been on me physically and mentally, I can honestly say that my faith has matured.  I would be lying if I said that fear is not a factor since now that my 'fight cancer' plan is more of a 'wait and see' what happens next with the tumor waiting game while continuing normal day to day activity in our home.  Nothing for me to power through except my own thoughts and even then I need to turn that conversation with myself into a conversation with Him.  Please be praying that I will continue to choose faith in spite of my natural responses!  "... we know that suffering produces perseverance, perseverance, character; and character, hope."  Rom 5:3-4


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