Since May is Brain Tumor Awareness Month I thought I would start with an update about my brain and the tumors attacking it! I had an MRI with contrast (that's the shorter less detailed MRI) and it showed no new tumor growth. That is good news since what I have is expected to grow. What my doctor explained is that since an MRI doesn't show cellular level we can't know if the cells are not dividing anymore or are just dividing much slower now. Either way, no new evidence of new tumor growth is good news. Hopefully the chemo will continue to shut down the blood supply to the tumor and stop the growth and then start killing it so that we can see a decrease in tumor size! I also completed round 9 of chemo in May. My next doctor appointment is on June 12 and I'm scheduled for round 10 of chemo to start on June 17. My next MRI with profusion (long one with more detail) is scheduled for July 5th. Of course all of these appointments and chemo start dates are contingent on my weekly blood work.
The first big event in May was Mother's Day. This year we didn't go to Arkansas like we usually do because David was working Saturday and Monday so I didn't want to make the trip alone with the kids. We did however get to go to lunch and sit on the patio at my favorite place... Joe T Garcia's with David's mom and dad. It was a very nice relaxing day together.
On James' actual Birthday we went as a family to Chuck E Cheese to play games. We had a great time but the definite highlight of his Birthday was getting to take his picture with the Mario on the side of the road on the way home! He was standing there waving at the cars because a new video game store was having a grand opening. James started screaming... look its Mario, a big one! I've never met a REAL Mario. So fun that it really is the little things that kids just love! He is still talking about getting to meet Mario the very first day he was there. We are still slowing down to wave at him on a very regular basis. Poor Mario, it's been rather hot here already!After much discussion about what he likes, he concluded there were just too many kids that didn't have hats to wear and in his opinion that is tragic... especially kids with no hair. So, we asked that his friends not bring him presents but bring hats for him to donate to kids with cancer so they can wear them if their hair has to fall out. He ended up with 27 hats and $15 to spend on more hats! He is excited to take them to donate them to a Children's Oncology Unit.
(He ended up going to Arkansas for a week after his party and this week has been in an all day camp so as soon as we have a moment we are going to deliver the hats!)
And I just liked these pictures of James (notice he even has a swimming hat!) with his cousin Bryton and this picture of me with my mom and little sister Neida.
Well, there was my May recap! More blog posts to come very very soon! Next up... My ONE year celebration or a more serious one that I have had spooling in my brain for a few days now.
3 comments:
It was great to see you back online again, and to hear the update on the chemo working... God, I am like all the others praying that it means its all working.. I loved the idea of your son, giving something back, what a super idea, and I bet those kids are going to love the hats,... amazing what one can do with so little effort, just a lovely thought..... all my positive wishes are with you and your lovely family and husband, all the very best from over the Pond.. j
I will continue to keep you in prayer. I'm sorry I haven't been able to visit your blog the way I used to.
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